Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent.
Julian Peter’s, now 29, routine visit to her doctor revealed she is living with the MRKH) syndrome.
The Kenyan woman narrated her story on BBC of how she discovered she has no vagina, cervix or womb some years ago.
“I was born with a condition called Mayer-Rokitansky-Küster-Hauser syndrome (MRKH), where you have no womb or vagina, and you can also find yourself with just one kidney.”
Peter who has already made peace with condition said that a woman who has MRKH can never get periods.
“I don’t have a uterus, so I’ve never had periods. This is the normal that I know, I don’t feel bad about it.”
Julian discovered her condition when she visited her doctor when she was 17-year old because of swollen leg.
“I discovered I had the syndrome when I was a 17-year-old school student.
I went to hospital as I had problem with my legs, which were swollen. The first thing the doctor asked me was when I last had my period. I had never had one.”
“It was this response that led to scan and later an operation that revealed Peter’s condition. Peter said the operation was meant to open up her closed reproductive tract which was closed was not successful.
They did a scan. The first image indicated that my reproductive tract was closed from the outside.
I went through an operation to open it, which was not successful.
“I had another scan that showed I had no uterus or vagina, and that was when I was diagnosed with MRKH.
I cried on the first day and the second day and the third, but then I moved on. I was only 17 and quite small, so my priority was to get back to school.”
Julian tried the operation ten years after and it was successful. She said the operation has helped to live a normal life.
“Ten years later, I went back to hospital and had a successful operation.
The type of MRKH that I had meant that I had no vagina, no womb and I only have one kidney. My vaginal canal was not there and it had to be created. My life is normal as MRKH does not interfere with how I want to live.”
She advised that women with same condition should consult psychologist in order for them to be able to deal with the condition.
Peter said many people live with the condition in Kenya.
To parents of girls with such condition, Julian advised not to go for the operation until they are grown up because it is painful and complicated.
“I’m advising parents who have babies with such a condition not to accept the operation when your child is young. Let it happen after they are grown up, when they can understand, because the procedure is complicated and long,” Julian explained.
Medical practitioners suggest that a girl with the condition can still live normal sexual life by creating a vagina without surgery, using dilators that expand and stretch her existing vaginal tissue over time. u This is a nonsurgical procedure that should be taught by a pediatric-adolescent gynecologist and/or clinical nurse specialist.
For more information on MRKH syndrome visit:
MRKH syndrome affects approximately 1 out of every 5000 females.